Rebecca R. Moultrie

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Use of a web-based portal to return normal individual research results in Early Check: Exploring user behaviors and attitudes

Benefit-risk preferences of patients for the use of artificial intelligence and ultrasound imaging in different settings in echocardiography

Misunderstood terms and concepts identified through user testing of educational materials for fragile X premutation: "Not weak or fragile?"

Managing uncertainty and responding to difficult emotions: Cancer patients’ perspectives on clinician response during the COVID-19 pandemic

Oncology patients' communication experiences during COVID-19: Comparing telehealth consultations to in-person visits

Education and consent for population-based DNA screening: A mixed-methods evaluation of the Early Check Newborn Screening Pilot Study

Patients' experiences with cancer care: Impact of the COVID-19 pandemic

Outreach to new mothers through direct mail and email: Recruitment in the Early Check research study

Barriers and facilitators to genetic service delivery models: Scoping review

Preferences for accessing electronic health records for research purposes: Views of parents who have a child with a known or suspected genetic condition

Preferences for the research use of electronic health records among young adults with fragile X syndrome or autism spectrum disorder

Parental views on newborn next generation sequencing: Implications for decision support

Ethical, legal, and social issues related to the inclusion of individuals with intellectual disabilities in electronic health record research: Scoping review

Formative research to develop a clinical trial decision aid that integrates quantitative patient preference data

"Just tell me what's going on": The views of parents of children with genetic conditions regarding the research use of their child's electronic health record

Supporting informed clinical trial decisions: Results from a randomized controlled trial evaluating a digital decision support tool for those with intellectual disability

Making clinical trials more patient-centered using digital interactive e-consent tools

Early check: Translational science at the intersection of public health and newborn screening

Factors affecting the communication experiences of newly diagnosed colorectal cancer patients

A digital decision support tool to enhance decisional capacity for clinical trial consent: Design and development